|
NAPC 2003 Agenda
National Anemia Patient Conference 2003
~ Working Together to Fight Anemia ~
Saturday, September 20 & Sunday September 21
Novotel – 45 The Esplanade, Toronto
Saturday, September 20
|
8:30-9:15
|
Conference Opening
Welcome & Introduction from each Patient Association
- Sickle Cell Association of Ontario
- Thalassemia Foundation of Canada
- Aplastic Anemia & Myelodysplasia Association of Canada
- Canadian Sickle Cell Society
- Fanconi Canada
- Anemia Institute for Research & Education
|
|
9:15-10:00
|
“Understanding Blood Transfusion and Implications for Patients with Chronic Anemia”- Dr. Heather Hume, Canadian Blood Services
|
|
10:15-11:00
|
“Importance of Hemoglobin levels in Bone Marrow Transplant”- Dr. Hans Messner, Princess Margaret Hospital
|
|
11:00-11:45
|
“Iron Overload, New Developments”
- Dr. Nancy Olivieri, University Health Network
|
|
|
Choice of Afternoon Sessions
|
|
|
Room
|
Champagne West
|
Champagne East
|
Provence Room
|
|
1:00-1:45
|
“Sickle Cell in the Adult Patient”Dr. Martin Steinburg, Boston University
|
“Clinical Management of Thalassemia”
Dr. Antonio Piga, Torino, Italy
|
“Inherited Marrow Failure Syndromes: Future Challenges”
Dr. Yigal Dror, Hospital for Sick Children
|
|
1:50-2:35
|
Panel: Pain Management for Sickle Cell Anemia Crisis: Meeting the Individual’s Needs
- Danièle Lamarche & Sylvie Champagne, Clinical Nurse Specialists, MUHC, Montréal
- Rosetta Cadogan, Canadian Sickle Cell Society
|
Pregnancy and the hemoglobinopathies
- Dr. Anne McLeod, UHN, Toronto
|
Workshop: Music Therapy- Leanne Needham, Music Therapist, Toronto
|
|
2:40-3:15
|
Workshop: Psychosocial Issues
- Kelly Flannigan, Toronto General & Wendy Bulthuis, Hospital for Sick Children
|
Workshop: Becoming your own healthcare advocate – journaling for empowerment
- Caroline Laughlin, Toronto
|
|
3:30-4:15
|
A Case Study of Neuropsychological Assessment and Educational Remediation at HSCDr. Brenda Miles
|
Hemoglobinopathy Research Programs at UHNDr. Nancy Olivieri & Cheryl Ethier, Giulia Muraca, Melissa Stamplecoski
|
Progress in Medications for the treatment of MyelodysplasiaDr. Hans Messner
|
|
4:15-5:00
|
“Blood Safety & Supply” Presentation/Panel
Facilitator: Durhane Wong-Rieger
- Dr.Barb Hannach, Medical Director, Canadian Blood Services, Toronto
- Penny Chan, PhD: Risks in Perspectives- Dr. Supriya Sharma, Health Canada: Health Canada’s Role
|
Sunday, September 21, 2003
|
Time
|
Activity
|
|
9:30-10:00
|
Opening Remarks – “Common elements in Anemia Management”
Dr. Hans Messner, Princess Margaret Hospital, Toronto
|
|
10:00-11:00
|
Optimal Thalassemia Care
Dr. John Porter, University College, London
Optimal Sickle Cell Clinics & Newborn Screening Programs
Dr. Bernard Davis, Whittington Hospital, London
|
|
11:15-12:45
|
Panel - Hematology Clinics & Anemia Services: Towards Comprehensive Care for Rare Anemias
|
Conference Closing.
|
